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Facts and Figures


  • Cystic Fibrosis (CF) is the UK's most common, life-threatening, inherited disease.
  • Cystic Fibrosis affects over 7,500 people in the UK.
  • In the UK, 2.3 million people carry the faulty CF gene - 1 in 25 of the population.
  • If both parents are carriers of the faulty gene, there is a 1 in 4 chance with every pregnancy that their child will have Cystic Fibrosis.
  • Cystic Fibrosis affects vital organs in the body, especially the lungs and digestive system, clogging them with sticky mucus, which makes it difficult to breathe and digest food.
  • Each week five babies are born with Cystic Fibrosis.
  • Each week three young lives are lost to Cystic Fibrosis.
  • Average life expectancy for someone with CF is 31 years.